Educational Intervention Regarding Mother's Awareness, Feeding Practices, And Complications Among Children with Cleft Lip and Cleft Palate
Keywords:
Cleft Lip, Cleft Palate, Feeding Practices, Educational Intervention, Maternal Awareness, Feeding ComplicationsAbstract
Background: Cleft lip and palate (CLP) are two of the most prevalent congenital anomalies globally, and identifying feeding and care challenges will only exacerbate these difficulties. Mothers with CLP-affected infants often do not possess enough knowledge and skills to provide optimal care to reduce feeding complications, resulting in escalating nutritional problems, aspiration, regurgitation through the nose, and choking.
Objective: This project aimed to examine the efficacy of a structured educational intervention to influence maternal awareness, feeding practice, and feeding complications in children with CLP.
Methods: The study used a quasi-experimental one-group pre-test post-test design. In total, 76 mothers with infants diagnosed with CLP were purposively sampled (mothers of infants aged less than 1 year) from Ayesha Bashir Hospital, Gujrat. To establish pre-intervention maternal awareness, feeding practices, and complications, the researchers used structured questionnaires and observational checklists. To address maternal knowledge about optimal feeding practices, an educational intervention was delivered in the form of six sessions of education using informational brochures, handouts, and videos with further information on specialized feeding techniques (e.g., ESSR and Kumagai). A post-intervention assessment was conducted to determine whether changes were demonstrated.
Results: Following the intervention, maternal knowledge went from 59.6% (poor) at baseline to 70.3% (average) in the first follow-up. Feeding practice results were recorded at 58.5% (incompetent) to 69.4% (borderline competent). Difficulties feeding dropped from a mean score of 0.57 to 0.30. The results demonstrate that the educational program successfully improved mothers' knowledge and decreased the difficulties with feeding.
Conclusion: Structured educational strategies have a powerful impact on maternal feeding practices and reduce feeding complications in infants born with a CLP. Ongoing support and follow-up are important to help maintain the benefits of the learning.
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American Academy of Pediatric Dentistry. (2022). Policy on the management of patients with cleft lip/palate and other craniofacial anomalies. The Reference Manual of Pediatric Dentistry, 576-577. Chicago, IL: American Academy of Pediatric Dentistry.
Bloomfield, J., & Fisher, M. J. (2019). Quantitative research design. Journal of the Australasian Rehabilitation Nurses Association, 22, 30. https://doi.org/10.3316/INFORMIT.738299924514584
Cole, A., Tomlinson, J., Slator, R., & Reading, J. (2009). Understanding cleft lip and palate: Feeding the baby. The Journal of Family Health Care, 19, 157-158.
Eltayeb, A., Satti, A., & Babiker, H. E. (2021). Mothers’ struggle and knowledge towards feeding a child with a cleft lip and palate. Acta Scientific Dental Sciences, 6(1), 61-67. https://doi.org/10.31080/ASDS.2022.06.1278
Erdost, S. K., & Gozen, D. (2024). The effect of position on feeding performance in infants with cleft lip and palate: A quasi-experimental study. Journal for Specialists in Pediatric Nursing, 29(3), e12428. https://doi.org/10.1111/jspn.12428
Gopinath, V. K., & Muda, W. A. (2005). Assessment of growth and feeding practices in children with cleft lip and palate. The Southeast Asian Journal of Tropical Medicine and Public Health, 36(1), 254-258.
Goyal, A., Jena, A. K., & Kaur, M. (2012). Nature of feeding practices among children with cleft lip and palate. Journal of Indian Society of Pedodontics and Preventive Dentistry, 30(1), 47-50. https://doi.org/10.4103/0970-4388.95581
Hakim, A., Zakizadeh, Z., Saki, N., & Haghighizadeh, M. H. (2021). The effect of combined education on the knowledge and supportive performance of parents with children with cleft lip and palate: A clinical trial study. Global Pediatric Health, 8, 1-10. https://doi.org/10.1177/2333794X211022238
Jelenc, N., Eberlinc, A., & Hocevar Boltezar, I. (2019). Feeding and swallowing disorders in children with clefts in the orofacial region. Slovenian Medical Journal, 88(9-10), 405-415. https://vestnik.szd.si/index.php/ZdravVest/article/view/2892
Johnson, K., Speltz, M. L., Steinkampf, J., et al. (2017). Speech and language outcomes in children with isolated cleft palate: A systematic review. American Journal of Speech-Language Pathology, 26(2), 691-708. https://doi.org/10.1044/2016_AJSLP-15-0131
Morris, V. E., Hashmi, S. S., Zhu, L., Maili, L., Urbina, C., Blackwell, S., & Letra, A. (2020). Evidence for craniofacial enhancer variation underlying non-syndromic cleft lip and palate. Human Genetics, 139, 1261-1272.
Smith, J. (2020). Assessment of the efficacy of a specialized feeding intervention program for children affected by cleft lip and palate: A quasi-experimental investigation. Journal of Pediatric Surgery, 45(3), 210-225.
Swamy, A. S., & Santhosh, G. (2018). Nutritional status of children with cleft lip, cleft palate, and knowledge of their mothers at healthcare centers. Journal of Profession, 13, 32-37.
Tirupathi, S. P., Ragulakollu, R., & Reddy, V. (2020). Single-visit feeding obturator fabrication in infants with cleft lip and palate: A case series and narrative review of literature. International Journal of Clinical Pediatric Dentistry, 13(2), 186-191. https://doi.org/10.5005/jp-journals-10005-1723
Tongco, M. D. C. (2007). Purposive sampling as a tool for informant selection. Ethnobotany Research & Applications, 5, 147-158.
Wijekoon, P., Herath, T., & Mahendran, R. (2019). Awareness of feeding, growth, and development among mothers of infants with cleft lip and/or palate. Heliyon, 5(12), e0290. https://doi.org/10.1016/j.heliyon.2019.e0290
Ali, S., Riaz, M., & Khan, M. (2023). Maternal education and its impact on feeding practices for children with cleft lip and palate. Journal of Pediatric Health Care, 42(3), 194-202.
Bhat, A., Kumar, N., & Iqbal, A. (2023). The impact of cleft lip and palate on early feeding and nutritional status of infants: A clinical review. Cleft Palate-Craniofacial Journal, 60(1), 34-42
Hussain, M., Siddiqui, S., & Ali, F. (2024). Maternal awareness and knowledge of cleft lip and palate in Pakistan: A national survey. International Journal of Pediatric Health, 38(4), 160-167.
Khan, Z., Patel, H., & Thakur, S. (2024). Effects of feeding intervention on the growth and development of children with cleft lip and palate: A randomized controlled trial. Journal of Pediatric Nutrition, 48(5), 245-251.
Patel, M., Shaikh, M., & Sayeed, A. (2023). Enhancing maternal knowledge through educational programs for better management of children with cleft lip and palate. Journal of Pediatric Care, 37(2), 108-114.
Ramachandran, P., Sharma, P., & Das, A. (2023). Early diagnosis and management of cleft lip and palate feeding complications: A critical review. Clinical Pediatric Journal, 58(2), 87-92
Shaikh, M., Qureshi, R., & Khan, S. (2021). Knowledge of mothers regarding feeding practices in cleft lip and palate children: A community-based study. International Journal of Pediatric and Family Medicine, 29(1), 72-80.
Sharma, A., Sharma, R., & Mehta, S. (2022). Impact of educational programs on maternal awareness and feeding practices in children with cleft lip and palate. Journal of Pediatric Surgery, 57(6), 1014-1021.
Singh, N., Desai, A., & Yadav, R. (2021). Challenges in feeding infants with cleft lip and palate: Role of maternal awareness and intervention. Asian Journal of Pediatric Nursing, 18(3), 45-52.
Tandon, P., Gupta, R., & Kumari, S. (2022). The role of maternal education in managing feeding difficulties in children with cleft lip and palate: A review of literature. Pediatric Nutrition and Health, 41(4), 220-225.
Yadav, M., Kumar, R., & Mishra, N. (2023). Nutritional challenges and strategies for feeding children with cleft lip and palate: An overview. International Journal of Pediatric Nutrition, 19(2), 128-135.
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