A Study To Understand The Issues In Physical Health And Coping Strategies Of Parents With Disabled Child

Authors

  • Monica. E
  • Praveen Kumar Chennimalai Ravi
  • Parthiban Pichandi

DOI:

https://doi.org/10.52783/jns.v14.2855

Keywords:

caregivers, coping strategies, Physical health, special child

Abstract

Objective: The purpose of this study was to better understand the physical health problems faced by parents with disabled child and kind of coping strategies that the parents   use to tackle their physical health problems

Material and Methods:This is an observational study conducted on 30 parents having children with neuro­logical or neurodevelopmental disorders; Nordic musculoskeletal questionnaire and World Health Organization Quality of Life (WHOQOL-BREF) were administered to measure physical health and their Quality of life respectively. Parents were asked to attend one scheduled face-to-face interview designed to gather information regarding their coping strategies that are used to tackle their physical health problems.

Results: According to Nordic musculoskeletal questionnaire, Low back pain and shoulder pain was the most common pain (76.66%). On WHOQOL-BREF, Social relationship domain was observed to be the best while the physical domain had the lowest score. The main coping strategy used by the parents is taking a break [73.33%] followed by undertaking medications like pain killers [43.33%], whereas the least are exercises and massage [23.33%].

Conclusion: Among parents with disabled child, Low back pain and shoulder pain were the most common reported physical health problems and the main coping strategies were taking breaks and medications.

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References

Ganjiwale D, Ganjiwale J, Sharma B, Mishra B. Quality of life and coping strategies of caregivers of children with physical and mental disabilities. J Family Med Prim Care. 2016;5(2):343–8.

Pueschel SM, Bernier JC, Weidenman LE. The special child: a source book for parents of children with developmental disabilities. 1988;368.

Frank - Stromborg M. Single instruments for measuring quality of life. Paul H Brooks Publishing Co. 1988;

Schalock RL, Baker A, Claes C, Gonzalez J, Malatest R, van Loon J, et al. The Use of Quality-of-Life Scores for Monitoring and Reporting, Quality Improvement, and Research. J Policy Pract Intellect Disabil [Internet]. 2018 Sep 1 [cited 2023 Aug 15];15(3):176–82. Available from: https://onlinelibrary.wiley.com/doi/full/10.1111/jppi.12250

Evans RL, Dingus CM, Haselkorn JK. Living with a disability: a synthesis and critique of the literature on quality of life, 1985-1989. Psychol Rep [Internet]. 1993 [cited 2023 Aug 15];72(3 Pt 1):771–7. Available from: https://pubmed.ncbi.nlm.nih.gov/8332680/

Allik H, Larsson JO, Smedje H. Health-related quality of life in parents of school-age children with Asperger Syndrome or High-Functioning Autism. Health Qual Life Outcomes. 2006 Jan 4; 4:1.

Brehaut JC, Kohen DE, Garner RE, Miller AR, Lach LM, Klassen AF, et al. Health among caregivers of children with health problems: findings from a Canadian population-based study. Am J Public Health. 2009 Jul;99(7):1254–62.

Raina P, O’Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005 Jun;115(6): e626-36.

Burton P, Lethbridge L, Phipps S, Burton P, Lethbridge L, Phipps S. Children with disabilities and chronic conditions and longer-term parental health. Journal of Behavioral and Experimental Economics (formerly The Journal of Socioeconomics) [Internet]. 2008 [cited 2023Aug15];37(3):116886.

Eisenhower AS, Baker BL, Blacher J. Children’s delayed development and behavior problems: impact on mothers perceived physical health across early childhood. Soc Sci Med. 2009 Jan;68(1):89–99.

Feldman M, McDonald L, Serbin L, Stack D, Secco ML, Yu CT. Predictors of depressive symptoms in primary caregivers of young children with or at risk for developmental delay. J Intellect Disabil Res. 2007 Aug;51(Pt 8):606–19.

Lazarus R, & FS. Stress, Appraisal, and Coping. New York: Springer. 1984;

Beagan B, Stadnyk R, Loppie C, MacDonald N, Hamilton-Hinch B, MacDonald J. Mothering Children with Disabilities and Chronic Conditions: Long-Term Implications for Self-Reported Health on JSTOR [Internet]. 2005 [cited 2023 Aug 15]. Available from: https://www.jstor.org/stable/25463621

Landsman GH. Reconstructing motherhood in the age of “Perfect” babies: mothers of infants and toddlers with disabilities. 1998;69–99.

Beresford BA. Resources and strategies: how parents cope with the care of a disabled child. J Child Psychol Psychiatry. 1994 Jan;35(1):171–209.

Dabrowska A, Pisula E. Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. J Intellect Disabil Res. 2010 Mar;54(3):266–80.

Smith LE, Seltzer MM, Tager-Flusberg H, Greenberg JS, Carter AS. A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. J Autism Dev Disord. 2008 May;38(5):876–89.

Beckman PJ. Comparison of mothers’ and fathers’ perceptions of the effect of young children with and without disabilities. Am J Ment Retard. 1991 Mar;95(5):585–95.

Düger T, Yilmaz O, Aki E, Kayihan H, Karaduman A. The environmental barriers of children with Muscular Dystrophies and its effect on mother’s low back pain. Disabil Rehabil. 2003 Oct 21;25(20):1187–92.

Tong HC, Haig AJ, Nelson VS, Yamakawa KSJ, Kandala G, Shin KY. Low back pain in adult female caregivers of children with physical disabilities. Arch Pediatr Adolesc Med. 2003 Nov;157(11):1128–33.

Tong HC, Kandala G, Haig AJ, Nelson VS, Yamakawa KSJ, Shin KY. Physical functioning in female caregivers of children with physical disabilities compared with female caregivers of children with a chronic medical condition. Arch Pediatr Adolesc Med. 2002 Nov;156(11):1138–42.

Kaya K, Unsal-Delialioglu S, Ordu-Gokkaya NK, Ozisler Z, Ergun N, Ozel S, et al. Musculo-skeletal pain, quality of life and depression in mothers of children with cerebral palsy. Disabil Rehabil. 2010;32(20):1666–72.

Dyson LL. Families of young children with handicaps: parental stress and family functioning. Am J Ment Retard. 1991 May;95(6):623–9.

Song L, Singer M. Life stress, social support, coping and depressive symptoms: a comparison between the general population and family caregivers. Int J Soc Welf. 2006 Apr 14;15(2):172–80.

Mugno D, Ruta L, D’Arrigo VG, Mazzone L. Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health Qual Life Outcomes. 2007 Dec 27;5(1):22.

Fernández-Ávalos MI, Pérez-Marfil MN, Ferrer-Cascales R, Cruz-Quintana F, Clement-Carbonell V, Fernández-Alcántara M. Quality of Life and Concerns in Parent Caregivers of Adult Children Diagnosed with Intellectual Disability: A Qualitative Study. Int J Environ Res Public Health. 2020 Nov 23;17(22):8690.

Okurowska –Zawada B. KW, * WJ, SD, PPG. Quality of life of parents of children with cerebral palsy. Prog Health Sci. 2011.

Shahzadi Malhotra* WKMSB. Quality of Life of Parents having Children with Developmental Disabilities. DELHI PSYCHIATRY JOURNAL. 2012;15.

Abdulhade I. Haimour RMAH. Evaluating Quality of Life of parents having a child with disability. International Interdisciplinary Journal of Education. 2012;1(2).

Christodoulou P, Christopoulou F, Stergiou A, Christopoulos K. Quality of Life of Parents of Children with Disabilities. European Journal of Education and Pedagogy. 2020 Nov 25;1(1).

Yuen Shan Leung C, Wai Ping Li-Tsang C. Quality of Life of Parents who have Children with Disabilities. Hong Kong Journal of Occupational Therapy. 2003;13(1):19–24.

Taylor SE, Repetti RL, Seeman T. Health psychology: what is an unhealthy environment and how does it get under the skin? Annu Rev Psychol. 1997; 48:411–47.

Tunks ER, Crook J, Weir R. Epidemiology of chronic pain with psychological comorbidity: prevalence, risk, course, and prognosis. Can J Psychiatry. 2008 Apr;53(4):224–34.

Miller WL, Crabtree BF. The SAGE Handbook of Qualitative Research (eds N. K. Denzin & Y. S. Lincoln), Sage Publications, London. 1994;340–52.

Heesch KC, van Uffelen JGZ, van Gellecum YR, Brown WJ. Dose-response relationships between physical activity, walking and health-related quality of life in mid-age and older women. J Epidemiol Community Health (1978). 2012 Aug;66(8):670–7.

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Published

2025-04-01

How to Cite

1.
E M, Kumar Chennimalai Ravi P, Pichandi P. A Study To Understand The Issues In Physical Health And Coping Strategies Of Parents With Disabled Child. J Neonatal Surg [Internet]. 2025 Apr. 1 [cited 2026 Feb. 7];14(10S):455-62. Available from: https://jneonatalsurg.com/index.php/jns/article/view/2855